I had to do a commemorative speech in my speech class, so I wrote about my husband. My husband has Huntington's disease. So, here is his story. Clarice, I want to thank you for starting this web site. You did a wonderful job. God bless.



Sabrina



There are many people that have inspired me and mean a lot to me. From the Lord, my parents, grandparents, friends and family. It was hard to narrow it down to one person, but my husband is truly a special person and I want to do a… Continue

My story is a long one i will make it short I met my best friend john when i was 14 years old we were like mutt and jeff his mom had Huntingtons well i married my best friend in 1990 after the death of his caregiver father passed away his mom became worse it affected us all includeing me and his sister Clarice. We then proceeded to have 2 girls Kayla 17 and Katrina 11 . John and I then divorced in 1998 but remained best friends he then became sick last year and was finally diagnosed with… Continue

I am running the P.F. Chang's Rock N Roll 1/2 Marathon this Sunday, Jan. 18th to raise money and awareness for Huntington's Disease. Please visit my fundraising page www.firstgiving.com/tinaedwards for more info on why I'm running or to make a donation.

Thanks!

My father was misdiagnosed about 20 times in 5 years before being properly diagnosed. Looking back, he had all the tell tale signs of the disease. Unfortunately, as a doctor once told me, it was grouped together with other "rare genetic diseases" that they may never encounter. In doing research online and through groups, this disease is not as rare as people think.



My father's health deteriorated, and by about 1995, he was no longer able to work. By 1999, he was no longer the dad I… Continue

By AMY HARMON

Published: March 18, 2007



The test, the counselor said, had come back positive.



The DNA Age

Choosing to Know



If you carried the gene for a fatal genetic disease, would you want to know?



Katharine Moser inhaled sharply. She thought she was as ready as anyone could be to face her genetic destiny. She had attended a genetic counseling session and visited a psychiatrist, as required by the clinic. She had undergone the recommended… Continue